I also said I was a pimp?? Which one do u believe?? Thats why Im on radio and u r here on the forum u do the forums good and I do the radio good.. we keep them wanting more.
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:lol
100k hits..
first post. and ur gonna nail me to the boards over it.
a charity formed in 2003 takes in 560k (got this figure in post 2224) between then and 2011 then spends 400k (got this figure post 2033) on an 11 day conference.
woww.
unless i took it up wrong and it was a trip for affected kids as well as the conference. sorry if im wrong
This can't be right, because it was the eight one it probably would mean that they spend EVERY penny they raise on these conferences. Unless for some reason the conference @ Disney was 100x the normal amount, spend on these things. They have another one planned in Mallorca (spain) next year, curious to know what the estimated cost will be for that one.....
I think these are separate from regular fundraising and combine a number of 22Q charities all rolled into one. From what I can tell from the site they probably recoup a good deal of the money:
http://22qconference.com/?page_id=970
http://22qconference.com/?page_id=35
The 404's are concerning.
The running of a conference would be part of the cause. Creating an environment where family's from around the world inflicted with 22q can meet and listen to experts is a worthy cause. It's quite a boost to meet others in the same situation and to get their tips on how to deal with certain aspects of their unique day to day life. If part of the funds go towards subsidizing families that otherwise couldn't attend that is good too. That said most conferences like that are run with the intent of making a profit.
shouldnt druff be writing this guy a thank you letter for putting this horrible looking site on the map
from 1of steve-o links it was a 4 day conference not 11 days. july 6th to july 10th
im not trying to create or stir shit here or make accusations about the charity its the numbers that are staggering
Shout out to all the n00bs in the house that type the same!
lol if this whole charity turns out to be a mismanaged joke also
Apparently, more questions. This time about the conference.
The conference was 4 days. It had 2+ days of programming for professionals, 2 days of programming for parents/families, and 2 days of workshops for families. Family workshops and professional programs ran on the same days (Sat/Sun). I arrived I. Florida on July 3rd to help starting the setup for the conference. There was a cost to parents and professionals to attend $250 parents, $400 professionals). So with fees, there is some money raised. We also sold ads in a commemorative program. I got the Filthy Limper radio show a free ad because Johnny had been mentioning the foundation and 22q on the show since April. Then, the foundation received many, many grants to fund this we applied for a year to various organizations for funding and raised most of it. Disney was chosen for the family part of this. Normally, this conference is held on a much smaller scale and for professionals only. Mallorca is supposed to be a combination conference, but there is a 22q group in Spain that is handling that. The foundation, in addition to Children's Hospital of Philadelphia, and the Dempster Foundation did a great deal of work on this. I don't think the Foundation could have done this by itself. But the work involved is enormous, and again, all volunteer. My wife and I came in late on this, and we worked for 7 months on it, mainly fundraising.
Cliffs:
22q puts on enormous conference
Much is paid by attendance fees and grants/donations
Conference is scheduled 4 days, my family goes to Disney early, and turns it into a 11 day volunteer workfest
Fundraising barely covers the nut due to Orlando's biggest fucking rat
FLPR free rolls the program book for helping spread awareness.
Joe
I've got to say, I'm pretty fed up with the accusatory questions towards the foundation at this point. I have answered every single one quickly and consistently for a week, and people keep churning them up. I'm done answering these at this point. I've given all the info I have on the foundation, and what Jasep's scam was all about involving the fundraiser radio show. I've also been on 3 radio shows to talk about this. I. Pretty fed up. There are plenty of worthy charities that struggle to stay afloat and help the people they want to help. In case people haven't noticed, the economy has been in the shitter for over 5 years, and people just aren't parting with their money these days. Times are tough, and all of these charities rely on donations to continue to do the work that they do.
So if you don't mind, please stop with the accusatory questions. Feel free to ask about the foundation, what work we do to help people, and anything along those lines.
I'm not answering any questions in regards to how they manage their money, their executive board, or anything like that. If you have suspicions, keep them to yourself, or go find the "Charity Fraud Alert" message board and post them there.
Thanks
Joe
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